I walked in to my oncologists office and there was about 100 people in the waiting room. The oncologists see patients with all sorts of cancers so they are always busy, but they were particularly backed up today. It took more than two hours before I actually got to see the doctor.
He recalled from my previous appointment that I did not want to do radiation or take the medication, so he was pleasantly surprised that I had finished my radiation treatment and I was now willing to take the medication. He thought he was going to have a "battle" with me. With no battle being necessary, he said to start Tamoxifen today and I would see him in 2-3 months for blood work and follow-up. He seemed eager to leave it at that but oh no. I waited two hours to see him and I had questions.
I learned from my radiation experience that the doctors do not necessarily prepare you for the worst case scenario. I wanted to know all about the bad side effects of Tamoxifen. Hot flashes and vaginal dryness is all he would tell me though, since that's what most women seem to experience. There are women in the Tamoxifen support groups on Facebook with all sorts of horrible side effects from Tamoxifen, but he didn't go into any of them. Soon as I stopped talking he says, "I'll see you in two months." I wasn't done yet though.
Given I didn't do the sentinel node biopsy, I was concerned about potential spread. I asked about an MRI or PET scan, but since I had early stage breast cancer he did not think they were necessary since they are not good at picking up microscopic cancer cells. If there was anything in the lymph nodes, the radiation would have taken care of it... supposedly. I'm glad he was so confident I'm in the clear, but I would rather have had some tests done to confirm it. He again said, "Ok, I'll see you in two months." LOL... this doctor really does not want to spend time with me.
My next question for him was what happens going forward. I'll see him in January (he's taking December off it seems). Then again every four months for couple of years, and then every 6 months until the five year mark. Blood tests at each follow-up to make sure things like my liver and kidney functions are good.
I had a few other questions before I finally decided to let the doctor go. The whole discussion with him probably was like 5-10 minutes after a two hour wait. It used to be that even though we paid a lot for health care in the US, it would at least be good care. I'm starting to feel like health care in this country is slipping while prices keep rising.
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